Patient Advisory Board

Soft Bones relies upon a Patient Advisory Board in order to secure first hand experience about what it is like to live with HPP. These advisory board members discuss unmet needs within the HPP community and provide suggestions for ways in which Soft Bones can best serve those with HPP, their families and the public at large.

Soft Bones relies upon a Patient Advisory Board in order to secure first hand experience about what it is like to live with HPP. These advisory board members discuss unmet needs within the HPP community and provide suggestions for ways in which Soft Bones can best serve those with HPP, their families and the public at large. They commit to a two-year term and we are always looking for additional patients and caregivers who want to be involved. Please contact us if interested in learning more.