Who We Are

Soft Bones is a community of people and families living hypophosphatasia (HPP). Through education, awareness and advocacy, we are working to connect, empower and educate the HPP community to provide support and further research and treatment of the disease.

Soft Bones is a community of people and families living with hypophosphatasia (HPP). Through education, awareness and advocacy, we are working to connect, empower and educate the HPP community to provide support and further research and treatment of the disease.

Our Mission

Learn more about our mission and the reason we exist.

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What We Do

We know that there is strength in numbers. Learn more about our partnerships and community programs.

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Contact Us

Get in touch with the Soft Bones organization.

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Board of Directors

Learn more about our board of directors.

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Patient Advisory Board

Learn more about our patient advisory board.

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Scientific Advisory Board

Learn more about our scientific advisory board.

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