Patient Registry

Soft Bones has partnered with Coordination of Rare Diseases at Sanford (CoRDS) to create an International HPP Contact Registry. Patients and caregivers can register information privately with the understanding that they will be contacted in the situation where patients are needed for a clinical trial or for research purposes.

Soft Bones has partnered with Coordination of Rare Diseases at Sanford (CoRDS) to create an International HPP Contact Registry. Patients and caregivers can register information privately with the understanding that they will be contacted in the situation where patients are needed for a clinical trial or for research purposes. It is important that participants update their information yearly. For more information contact CoRDS at cords@sanfordhealth.org or (877) 658-9192.

Visit CoRDS