Soft Bones Recognizes Rare Disease Day by Showcasing The Rare Talents of Our HPP Community

Being diagnosed with a rare disease is a defining moment for many families. However, this year we recognize and celebrate that we are not defined by our disease. Instead, we look beyond what else makes us rare and shine the spotlight on the amazing talents of our HPP patients. Our campaign, “My disease is Rare ...

Being diagnosed with a rare disease is a defining moment for many families. However, this year we recognize and celebrate that we are not defined by our disease. Instead, we look beyond what else makes us rare and shine the spotlight on the amazing talents of our HPP patients.

Our campaign, “My disease is Rare and so am I”, raises awareness of HPP, but also provides hope to our patients and families and shows the world that we have HPP but the sky is the limit!

Thank you to everyone who participated and please consider sharing this with your contacts in social media.

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